{"product_id":"rare-threads-a-life-with-prader-willi-syndrome-paperback","title":"Rare Threads: A Life with Prader-Willi Syndrome - Paperback","description":"\u003cp\u003eby \u003cb\u003eSebastiaan Van Nuissenburg\u003c\/b\u003e (Author)\u003c\/p\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003eIn Rare Threads: A Life with Prader-Willi Syndrome, Sebastiaan Van Nuissenburg shares the poignant journey of raising a child with two\u003c\/p\u003e\u003cp\u003erare genetic conditions. From the overwhelming joy of birth to the stark realities of being the parent of the only child in the world to be born\u003c\/p\u003e\u003cp\u003ewith Prader-Willi Syndrome UPD \u0026amp; Chromosome 16 microdeletion, Sebastiaan offers a raw and honest portrayal of the mental challenges, \u003c\/p\u003e\u003cp\u003esacrifices, and triumphs encountered along the way. From infancy to the pivotal age of 10, readers are immersed in Sebastiaan's world as a parent, exploring effective strategies, pitfalls to avoid, and the quest to foster independence in their child. Seamlessly blending candid reflections with whimsical anecdotes, Rare Threads celebrates every child's\u003c\/p\u003e\u003cp\u003eindividuality and the unwavering love of extraordinary parents navigating uncharted territories.\u003c\/p\u003e\u003cp\u003eJoin Sebastiaan on this extraordinary journey filled with love, tears, laughter, and understanding as he unravels the rare threads that bind his\u003c\/p\u003e\u003cp\u003efamily together, offering hope and support to other families facing similar challenges. Rare Threads: A Life With Prader-Willi Syndrome Sebastiaan Van Nuissenburg\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cdiv\u003e\n\u003cstrong\u003eNumber of Pages:\u003c\/strong\u003e 240\u003c\/div\u003e\u003cdiv\u003e\n\u003cstrong\u003eDimensions:\u003c\/strong\u003e 0.65 x 9 x 6 IN\u003c\/div\u003e\u003cdiv\u003e\n\u003cstrong\u003ePublication Date:\u003c\/strong\u003e August 14, 2024\u003c\/div\u003e","brand":"Books by splitShops","offers":[{"title":"Default Title","offer_id":51774583275808,"sku":"9781923087170","price":37.78,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0974\/9764\/5344\/files\/a35feba0a1f4073adbf18e78d7c85efb.webp?v=1780451419","url":"https:\/\/ebocreations.com\/products\/rare-threads-a-life-with-prader-willi-syndrome-paperback","provider":"The E-Book Oasis LLC","version":"1.0","type":"link"}